DonatePediatric Central Nervous System or ETMR Clinical Trials
(Recruiting or Active)
ETMR One: An International Registry and Research Platform for Children With Embryonal Tumor With Multilayer Rosettes
SJDAWN: St. Jude Children's Research Hospital Phase 1 Study Evaluating Molecularly-Driven Doublet Therapies for Children and Young Adults With Recurrent Brain Tumors
Sirolimus in Combination With Metronomic Chemotherapy in Children With Recurrent and/or Refractory Solid and CNS Tumors (AflacST1502)
Study of B7-H3, EGFR806, HER2, And IL13-Zetakine (Quad) CAR T Cell Locoregional Immunotherapy For Pediatric Diffuse Intrinsic Pontine Glioma, Diffuse Midline Glioma, And Recurrent Or Refractory Central Nervous System Tumors
Study of B7-H3-Specific CAR T Cell Locoregional Immunotherapy for Diffuse Intrinsic Pontine Glioma/Diffuse Midline Glioma and Recurrent or Refractory Pediatric Central Nervous System Tumors
Study Of Palbociclib Combined With Chemotherapy In Pediatric Patients With Recurrent/Refractory Solid Tumors
HER2-specific CAR T Cell Locoregional Immunotherapy for HER2-positive Recurrent/Refractory Pediatric CNS Tumors
hemo-immunotherapy Using Ibrutinib Plus Indoximod for Patients With Pediatric Brain Cancer
Targeting Pediatric Brain Tumors With Sodium Glucose Cotransporter 2 Inhibitors (SGLT2i)
Magrolimab in Children and Adults With Recurrent or Progressive Malignant Brain Tumors (PNOC025)
Study of the Bromodomain (BRD) and Extra-Terminal Domain (BET) Inhibitors BMS-986158 and BMS-986378 in Pediatric Cancer
Precision Medicine for Every Child With Cancer (ZERO2)
Ex Vivo Drug Sensitivity Testing and Multi-Omics Profiling
Pediatric Prospective Personalized Immune and Target Identification Trial (PPROSPERITIT)
Recent Literature
For more information on ETMR and other rare pediatric brain cancers, you can download and read the following publications.
Molecular Classification and Management of RarePediatric Embryonal Brain Tumors
Embryonal Tumors of the Central Nervous System in Children: The Era of Targeted Therapeutics
Embryonal Tumors of the Central Nervous System in Children: The Era of Targeted Therapeutics
Embryonal tumor with multilayered rosettes: Overview of diagnosis and therapy
Family Resources
Financial
A. One Mission https://onemission.org/how-we-help/financial-relief-programs/
B. Family Reach https://familyreach.org/gethelp/
C. Financial Assistance Grants - Joe Andruzzi Foundation https://joeandruzzifoundation.org/how-we-help/financial-assistance-program/
D. Education - Triage Cancer https://triagecancer.org/
Palliative Care
A. Courageous Parents Network https://api.courageousparentsnetwork.org/app/uploads/2021/10/CPN-Introduction-to-Pediatric-Palliative-Care_R2.pdf
Psychosocial Support
A. CAC2 (Hope Portal)
https://cac2.org/impact-areas/family-support/hope-portal/
B. ETMR Warriors