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Who We Are
Our mission is to catalyze groundbreaking preclinical research into ETMR and other rare pediatric brain cancers, fostering hope for a cure.
Our vision is to eradicate ETMR and other rare pediatric brain cancers through supporting transformative research and encouraging global scientific collaboration.
Other than ETMR, some additional rare pediatric brain tumors include:
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This is a rare and clinically aggressive tumor that mainly affects children less than 3 years of age, but can also occur in older children and adults.
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This is a rare and clinically aggressive tumor that forms in the brainstem. Incidence is 1-2 cases per 100,000 population with a peak at 6-9 years of age.
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These account for 1-4% of brain tumors in children and mainly present in children less than 2 years of age. There are 3 categories:
Chordoid Plexus Papilloma (CPP)
Atypical Chordoid Plexus Papilloma (ACPP)
Chordoid Plexus Carcinoma (CPC)
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These account for 1.2-4.6% of intracranial tumors in children less than 18 years of age.
Join Now
Join Now
Monthly Giving Program
As a member of our monthly giving program, your donation will accumulate over time to fund research directed towards future revolutionary treatments. Donations from our monthly givers combine to make a difference in the lives of future children suffering with ETMR and other rare pediatric brain cancers. Becoming a sustaining member of our charitable community is very easy. Simply input the amount and check the box to Make this a monthly donation.
TOGETHER WE CAN DO MORE.
Join us in our journey to create a world where ETMR and other rare pediatric brain cancers no longer exist.
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Donation in Kind
Do you wish to donate your time to help The Jonah Finn Foundation? We would love to hear from you. Please send us an email at info@jonahfinnfoundation.org
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Become a Corporate Sponsor
Our corporate sponsors provide support of all kinds. Our most generous corporate sponsors will be acknowledged with their logo on our website. If your corporation is interested in supporting our mission, please send us an email at info@jonahfinnfoundation.org
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Become a non-Profit Partner
Is your organization dedicated to a similar mission as ours? We welcome collaborations that aim to synergize in providing financial support that advances scientific objectives in the areas of ETMR and other rare pediatric brain cancers. Please send us an email at info@jonahfinnfoundation.org
Testimonial
“The unwavering and generous support of the Jonah Finn Foundation has been essential in forwarding my lab’s focus on ETMR research, the pursuit of new treatments, and generating new hope for patients here and across the globe. With their help, not only have we been able to deepen our understanding and broaden our own research projects, but also foster new relationships and collaborations with an international consortium of top-tier labs and researchers. This has led to a whole new stream of young scientists to join our team in the quest to cure ETMRs. The foundation has shown that one united team of doctors, families, advocates, fundraisers, and everyone else who contributes to this challenge is how we will make progress. Thank you for all you do, JFF!”
Mariella G. Filbin, MD, PhD
Co-Director, Brain Tumor Center of Excellence
Research Director, Pediatric Neurooncology Program
Dana Farber Cancer Institute
Donate Now
Thank you for your compassion and generosity. The Jonah Finn Foundation is a 501(c)(3) nonprofit organization registered with the State of Massachusetts. All donations are tax deductible.
Join us on this social journey.
GIFTS that Give back to you
We invite you to consider these types of gifts which may offer tax benefits for you.
Gifts of appreciated stocks or other investments:
When you donate appreciated stocks or mutual funds to the Jonah Finn Foundation, you will not pay capital gains tax, as it is a charitable gift to a non-profit organization as opposed to taxable income. You may also be entitled to a federal income tax charitable deduction.
The Jonah Finn Foundation
250 Chestnut St.
Cambridge, MA 02139
Tax ID number: 83-1661530
Make a Qualified Charitable Distribution (QCD) from an Individual Retirement Account (IRA)
Our donors over 70.5 years of age can make an IRA Charitable Rollover. This is a direct gift from their IRA and is a tax-free distribution. A gift amount of their choice can be transferred from their IRA directly to the Jonah Finn Foundation. This gift qualifies as a portion of their minimum distribution without being considered taxable income. If you are interested in this option, please contact your IRA administrator to request that a QCD from your IRA be issued in the amount of your choice. Ask them to include your name and address as the donor in connection with this transfer and to copy you on the transmittal as well.
The Jonah Finn Foundation
250 Chestnut St.
Cambridge, MA 02139
Tax ID number: 83-1661530
Welcome to the Jonah Finn Foundation
Share with us your thoughts and inquiries, as we are here to listen and help. Expect a prompt response from our dedicated team. Don't forget to select a secure storage option for your submissions.